T1D Exchange Clinical Registry
Study Name: T1D Exchange Clinical Registry
Principal Investigators: Desmond Schatz, M.D. and Janet H. Silverstein, M.D.
Study Coordinator: Erica Dougherty
Phone: (352) 334-0281
What is the T1D exchange?
This study is being done to learn more about type 1 diabetes. The study involves the collection of information about patients with type 1 diabetes. This information is the same information that will be collected for your medical record. Several centers in the United States are taking part in the study. It is hoped that by putting the information together from several centers we can learn whether some ways of treating type 1 diabetes are better than other ways.
In the future, the T1D Exchange will have a website for you to access your information recorded for the study, if you want to. It will also be a way to learn more about the T1D Exchange and diabetes research.
Who can participate?
People of any age diagnosed with type 1 diabetes. To learn what centers are participating please go to www.t1dxregistry.org and click on clinics.
What do I have to do as a participant?
The study involves the collection of information that is already being collected for your medical record. Your information will be assigned a code and your name will not be used. The information collected will be related to when you developed diabetes, how it was diagnosed, and how it was treated. As time goes on, we will update the information about your diabetes and how it is being treated each time we see you.
There is no special testing for the study. There are no special office visits for the study. You will be treated the same whether or not you are in the study. The study may last for as long as 25 years.